We are so excited about this year's linup!
We are posting individual workshop titles and descriptions as they are finalized.
Stay tuned because this page changes often!
PS: A complete schedule, with times, dates and rooms will be shared soon.
We are posting individual workshop titles and descriptions as they are finalized.
Stay tuned because this page changes often!
PS: A complete schedule, with times, dates and rooms will be shared soon.
WORKSHOP descriptions tbd:
- Finding/Hiring/Retaining Caregivers: Oregon Home Care Commission (OHCC); notebooks will be provided for all attendees.
- How to Be an Effective Advocate: Les Rogers.
- Intersection of Disability and Race: Keith Jones.
- Life Care Planning: Alisha Langford.
- Self-Care/Burn Out: Lauren Lowery.
- Teen/Young Adult Panel: Luke Laurenson and other presenter(s) TBD.
WORKSHOP DESCRIPTIONS:
Ableism
Ableism, like other forms of oppression, works to maintain the status quo in order to protect the power of certain groups.
This presentation will focus on how our society thinks about disability and how these narratives tend to narrow the lives of people with disabilities. We will discuss ways that customers, support providers, and allies can recognize ableism and offer alternative perspectives that empower people with disabilities.
This presentation will focus on how our society thinks about disability and how these narratives tend to narrow the lives of people with disabilities. We will discuss ways that customers, support providers, and allies can recognize ableism and offer alternative perspectives that empower people with disabilities.
PRESENTER:
Allen Hines ACCESS DIRECTOR AT COMMUNITY VISION |
Complex Access & Communication: an Approach for Emerging Communicators
Augmentative & Alternative Communication (AAC) is a journey. For children with complex motor and/or sensory differences, knowing where to begin and how to progress can be daunting.
During this session, we will discuss an approach that teases apart Participation, Access, and Language for children with complex motor challenges. We will use examples and stories to illustrate. Attendees will practice recording a fun conversation on a Step-by-Step device and leave with a handy checklist to take home.
During this session, we will discuss an approach that teases apart Participation, Access, and Language for children with complex motor challenges. We will use examples and stories to illustrate. Attendees will practice recording a fun conversation on a Step-by-Step device and leave with a handy checklist to take home.
PRESENTERS:
Carrie Luse, OT THE COMMUNITY VISION AT LAB |
Noelle Birky, SL THE COMMUNITY VISION AT LAB |
Enteral/Tube Feeding
Have you ever wondered if you could do tube feedings with real food? Or maybe you've already tried, but you found the process cumbersome or difficult?
Then this workshop is for you! Beverly McNutt is a mom with 19+ years of experience with tube feeding real food. In this workshop, Beverly and her husband, Stan, will share tips and demonstrate how her family does tube feeding with real food.
Beverly says, "Some folks cannot do real food. And some do a combination. There is no right or wrong way. I'm here to support you and what works for you. I hope we all learn things together so that our loved ones can eat and thrive on real food when possible."
Note: A feeding tube is a medical device used to provide nutrition to people who are unable to swallow safely, cannot obtain nutrition by mouth, or who need extra nutrition. Feeding tubes can be temporary or lifelong.
Then this workshop is for you! Beverly McNutt is a mom with 19+ years of experience with tube feeding real food. In this workshop, Beverly and her husband, Stan, will share tips and demonstrate how her family does tube feeding with real food.
Beverly says, "Some folks cannot do real food. And some do a combination. There is no right or wrong way. I'm here to support you and what works for you. I hope we all learn things together so that our loved ones can eat and thrive on real food when possible."
Note: A feeding tube is a medical device used to provide nutrition to people who are unable to swallow safely, cannot obtain nutrition by mouth, or who need extra nutrition. Feeding tubes can be temporary or lifelong.
PRESENTERS:
Beverly and Stan McNutt PARENTS, AND TUBE-FEEDING EXPERTS |
GRIEF HAPPENS
Christine says, "This session will approach grief from several perspectives while recognizing the unique and not so unique circumstances under which we all grieve.
I will talk about parents of children with disabilities, persons with disabilities whether congenital or acquired, and the aging process. I will share various paradigms for coping with grief along with suggestions to find support, provide support, and accept support. Grief, in one form or another, is a part of each of our lives."
I will talk about parents of children with disabilities, persons with disabilities whether congenital or acquired, and the aging process. I will share various paradigms for coping with grief along with suggestions to find support, provide support, and accept support. Grief, in one form or another, is a part of each of our lives."
PRESENTER:
Christine Macfarlane, PhD PROFESSOR EMERITUS, PACIFIC UNIVERSITY |
IEP: QUESTION AND ANSWER TIME
Diane Wiscarson and Susana Ramirez will present a short explanation of special education entitlements and rights. They will then will open up the session for specific special education questions.
PRESENTERS:
Diane Wiscarson Wiscarson Law |
Susana Ramirez Wiscarson Law |
IEP'S AND IDEA
This session will give essential insights about the Individual Education Plan (IEP) process and the federal Individuals with Disabilities Education Act (IDEA).
It's designed to empower you-a parent or caregiver--so that you can help your school team craft an effective IEP, tailored to the unique needs of your child.
Learn about:
You'll leave the session with practical knowledge and tools to make you better prepared to advocate for your child.
It's designed to empower you-a parent or caregiver--so that you can help your school team craft an effective IEP, tailored to the unique needs of your child.
Learn about:
- Evaluation tools
- Assessment strategies
- Setting realistic goals
- How to collaborate with school teams to ensure a supportive educational journey for your student and family.
You'll leave the session with practical knowledge and tools to make you better prepared to advocate for your child.
PRESENTER:
Kaeleen Kirkpatrick, Ed.S. school psychologist (Tigard-Tualatin School District) |
Muscle Tone/Tone Management
Dr. Jenny Wilson will review the types of tight muscle problems that people with cerebral palsy experience and the different treatment approaches available.
Dr. Wilson is an associate professor of pediatric neurology at Oregon Health & Science University. She cares for children with neurodevelopmental disabilities, cerebral palsy, movement disorders, and pediatric stroke. She sees children for treatment of tight muscles at Shriner’s Hospital for Children in Portland.
Dr. Wilson is an associate professor of pediatric neurology at Oregon Health & Science University. She cares for children with neurodevelopmental disabilities, cerebral palsy, movement disorders, and pediatric stroke. She sees children for treatment of tight muscles at Shriner’s Hospital for Children in Portland.
PRESENTER:
Dr. Jenny Wilson, MD Associate Professor, Pediatric Neurology; Pediatric Neurology Residency Program Director; Doernbecher Children’s; Hospital Oregon Health & Science University |
ORTHOPEDIC ISSUES
This workshop will focus on understanding hip problems in children with cerebral palsy from birth to adulthood.
We will discuss the role and rational of non-operative management, hip surveillance and surgical treatment.
We will discuss the role and rational of non-operative management, hip surveillance and surgical treatment.
PRESENTER:
Jeremy Bauer Oregon Health and Sciences University and Shriners Children’s – Portland |
PARENTS' PANEL
This is a joint discussion, brought to you by several moms (Rebecca Adams, Jenny Eckart Hoyt, and Sylvia Triplett), and two dads (Beowulf Rochlen and another dad).
PRESENTERS:
Rebecca Adams PARENT, AND RETIRED RN 
Sylvia Tripplet PARENT 
ANOTHER DAD INFO COMING SOON |
Jenny Eckart Hoyt PARENT, AND UCP BOARD MEMBER 
Beowulf Rochlen PARENT, AND founder and COO of Two Squared Media Productions, |
Sibling PANEL
The panel will be moderated by Nikki Donnelly, the co-founder of the Oregon Sibling Leadership Network.
Nikki will be speaking about SibShops. SibShops are an opportunity for siblings of children who experience disabilities or health concerns to obtain peer support and have fun together.
Nikki will be speaking about SibShops. SibShops are an opportunity for siblings of children who experience disabilities or health concerns to obtain peer support and have fun together.
moderator:
Nikki Donnelly co-founder of the Oregon Sibling Leadership Network, autism consultant, and adjunct faculty at Portland State University, Fresno Pacific University and the University of Illinois Urbana Champaign |
Supported Living in a Home of Your Own
This session will focus on how to enable people with I/DD to live in their own place through the utilizing supported living services, accessing affordable housing, and engaging in community life.
Using success stories from Community Vision, attendees will learn that moving out is truly possible.
Using success stories from Community Vision, attendees will learn that moving out is truly possible.
PRESENTER:
Jennifer Knapp Executive Director at Community Vision |
Transitioning to Adulthood: Education, Work, and Life
Two Transition Network Facilitators (Les Rogers and Josh Barbour) come together to discuss strategies for engaging with support services in education, vocational rehabilitation, ODDS, and additional services to support youth in realizing a full life.
This presentation will include discussions about Transition Services for ages 14-21 and how the Transition Technical Assistance Network can support that process.
This presentation will include discussions about Transition Services for ages 14-21 and how the Transition Technical Assistance Network can support that process.
PRESENTERS:
Les Rogers Douglas, Coos, and Curry County Transition Network Facilitator |
Josh Barbour Transition Network Facilitator |
Radical Wellness for CareGivers
Goals:
Objectives:
- Begin to learn and use tools that help offer care.
- Use self-compassion, mindfulness, and tenderness as tools.
- Respond to your own needs and offer help to others.
Objectives:
- Identify and understand personal self-care needs.
- Learn and practice self-compassion.
- Create a mantra that hold space for you.
PRESENTER:
Rosanne Marmor, LSCW CEO AND FOUNDER OF PULSE WELLNESS COOPERATIVe |
REGISTRATION IS NOW OPEN!
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